Pages

Showing posts with label anal stenosis. Show all posts
Showing posts with label anal stenosis. Show all posts

Monday, March 4, 2013

Praying It's Over


It got so bad last night, he couldn't sleep. We finally resorted to what will hopefully be his last enema. We just wanted to get him past it. He's a much  happier boy today. I'm praying he stays that way.

Sunday, March 3, 2013

A Not-So-Well Child Checkup



Drake and I had to make a {slightly} premature visit to the pediatrician on Friday. He was due for his 15 month well-child check this Thursday, but he hasn't been very "well" lately. It's nothing new to us - just a few bad battles with his anal stenosis. It was the fact that it seemed, both to Justin and I, to be getting worse over all instead of better, that finally prompted me to call the pediatrician and ask for the next available appointment. I just can't stand watching him cramp up and grunt and cry all the time anymore. I can't explain it any other way to you except to say that I feel like I coach my son through labor nearly every day. That is seriously the only other place I have heard sounds like the ones that come out of my son when he is trying to go to the bathroom. It's awful. So to the pediatrician we went.
Our original pediatrician in Helena is the one who made the anal stenosis diagnosis. He said there was a constriction about half an inch up in there. He told us to avoid certain foods like bananas and white rice to avoid him getting constipated on top of it, and that the act of pushing his stools out would, over time, help him to stretch and eventually grow out of the condition. When we first saw Drake's new pediatrician and filled him in on Drake's history, he seemed... skeptical. But Drake was not having trouble with it at that particular time so it wasn't much of a conversation. But now, with it seeming to suddenly get worse, he was forced to tell me what he thought. Basically, he told me it was a diagnosis he very rarely - if ever - makes and that he thought that Drake was, for whatever reason, just a child prone to constipation. He said all of this without ever having done a physical exam himself. So now it was my turn to be the skeptic. How can you tell me that my son is just constipated when I've done everything to avoid that? He gets all the right foods. Prunes, pineapples, whole grains... and nothing that can clog him up. It's honestly so disheartening to me. I'm a firm believer that food is healthcare and hesitate to medicate unless absolutely necessary. That being said, the pediatrician did go on to say that sometimes constipation can become a vicious cycle, getting big and hard on the inside and stretching out the rectum, and creating a pocket for future stools to get bigger and harder and stretch out... you get the idea. He said we needed to break the cycle. He recommended Miralax and assured me that it was a safe drug that never absorbs through the intestine wall into the bloodstream, but sits in the intestine, drawing in excess water to soften the stool. So that's what we're doing. Because he was certainly right about one thing: we have to break this cycle for my son. But I have my eye on you, doc. You better not act like I'm crazy if we encounter more problems in the future.
Drake still hasn't been able to go to the bathroom (it's now Sunday evening) though he tries every half hour or so. I'm praying the Miralax kicks in soon and we can put this all behind us. And you won't have to read the words "stool" and "rectum" so often. Sorry about that.
Other than that, Drake is doing very well. Developing normally (though he makes me abnormally proud). He's in the 50th percentile for height and weight but the 87th percentile for head circumference. Poor kid - he's got a big head just like his Momma's side of the family. I still maintain it's room for all those brains. He got caught up on his shots - two in each leg, which seemed awfully unfair to me - but he was a stud about it.
Afterward, we had to stop by the store to get the Miralax and a couple things for dinner. In the checkout line, a man in his fifties and dressed in a dirty, over sized coat started talking to Drake and I. He told us that he had four kids and NINETEEN grand kids. He was there to buy a toy for one of them. He was pretty taken with Drake, talking and smiling at him. Then he showed Drake something off the impulse-buy shelves: a blue rubber duck. Drake lit up. The man offered to buy it for him. Random kindness like that is so rare, I hardly know how to react to it. To be honest, I'm used to men that look like he did being slightly on the creepy side, leaning more towards inappropriate flirtation than anything else. I tried to politely decline, mentioning that we had some at home (we only have one). But when I tried to take the duck from Drake so that we could leave, he almost lost it. I didn't have the heart to just yank it from him after the day/week he had had. As I was trying to gently pry it from his hands and convince him that his lovie was enough, the man offered a second time. This time I smiled and said thank you. I think it made Drake's day. And the pleasant surprise was good for me, too. 

15 Month Stats:
Height: 31"
Weight: 22 lbs 11 oz
Head: 19"

Wednesday, February 20, 2013

I don't get this kid

I've really been struggling with getting my boy everything he needs nutritionally. He has limitations because of his anal stenosis - no bananas, no apple sauce, no white bread, no white rice - but on top of that, he is becoming increasingly picky. I don't understand. I feel like we're going in the wrong direction. Early on, he wanted anything we were eating. And not just to try it. He would eat substantial amounts of food off of my plate. Complex, highly seasoned foods. Salads. Steamed veg. Anything. But suddenly, all of that went out the window. I have to try over and over to find something he will eat. If it could be considered a bread product, he will eat it. So I try to bake a lot of good things - dried fruits and shredded veggies and seeds and nuts - into muffins and unsweetened cookies. But I know he can't live a life on bread products alone, as much as I may doctor them. So I try. Every time, I try. I try oranges and apples and pears and slices of cheese and grapes and soup and eggs and ..... sigh. I've tried it all. Sometimes I'll succeed, for a bite or two, but then he refuses to eat again.
So, when he reached for a couple of tangerines the other day, you can understand that I assumed he just wanted to play with them. They do look like balls, after all. Since we had so many of them, and he was being a pill, I decided to hand them to him. I watched him roll them and toss them for a minute or two before heading off to do the dishes. Imagine my surprise when I found him like this:



























Yep. Eating the sad, beaten up tangerines. Peel and all. What? The last five times I had offered them to him - peeled and segmented, of course - every single segment had ended up on the floor. But look at him tear into this thing:


I watched this strange but fascinating phenomenon for a couple of minutes but then Drake gagged on a large chunk of peel he had torn off and I got nervous. Thinking he would appreciate the gesture, I peeled the rest off for him and handed him back the half eaten tangerine. He lost it. Absolutely lost it. He was so mad at me and refused to have anything further to do with his tangerine.
I'm so confused...

What challenges do you have feeding your family? Any tips or advice? I'd love to hear from you.


Friday, February 8, 2013

Like a bad country song...

Last week was one of the worst weeks of my life so far. I'm not saying that to be dramatic. It just happens to be the truth. If there was a record of my worst weeks - with weeks that family members died and boys broke my heart - this one would land somewhere in the top three.
I have been debating with myself a lot about how much of this story I'm going to tell you. It's an extremely personal one, and one that I think most people would not tell. But, with the space of a few days to clear my head, I think I'm going to share it. Number one: because that's what writers do. And once, I promised to be real when writing here on this blog. And number two: in case any one who happens to read this goes through the same thing some time in the future, I want you to know I understand and I'm here if you need someone to talk to.


*deep breath*

I guess I should start at the beginning...
I thought I was having my first cycle since my son was born (he's 14 months old now but we had been nursing the whole time). I bled lightly for three days and then it quit. It seemed normal and I thought nothing of it. But then four days later it started again, and this time it came with horrible abdominal pains. At first I thought, "Man, the first period after a baby really sucks." And I've heard that, for some, that really is true. But after two days of increasing pain - a pain that stabbed me like a knife if I bent over or tried to get up off of the couch - I had a sick feeling that something wasn't right. I asked my husband to bring home a pregnancy test when he got out of classes. It was positive.
This is where it gets really hard for me to tell...
I sank down onto the side of the bathtub and rested my head against the sink, crying. It escalated and escalated until soon I was rocking back and forth, thumping my head into the sink, sobbing and saying, "What did I do? What did I do?" That's how my husband found me.
A million fears and pangs of guilt had overwhelmed me in an instant. I had missed a few doses of my birth control pill around Christmas. I forgot to get it refilled before the holiday weekend and when my husband and I were impatient, I said a quick prayer, "Lord, only if it's Madeleine."  You see, that's my daughter. I've seen her. I know what she's going to look like and I know she's mine. So I said the prayer that I would only get pregnant if it was time for Madeleine. I didn't feel ready to be pregnant again already, but if it was her time, I was willing. And that's where I should have stopped. In that place of faith and trust - that's where I should have rested. But instead, as soon as I could get my birth control refilled, I started taking it again. And all of that is running through my head as I'm reeling from the collision of facts: a positive pregnancy test, bleeding, and severe abdominal pain. "I feel like I've lost my baby girl," I choked out.
Here is where I have to tell you that my husband is a super hero. He stepped up in that moment to be everything I needed him to be and said everything I needed him to say. Not that it stopped the crying, but I don't know how I ever would have faced last week without him there.
The next morning my  husband woke me up at 8 am with a cup of tea and some good news. He had woken up early, cancelled his entire day (a practice flight, a stage check with the head instructor, and three classes) and made me an appointment with my doctor in Helena. "We leave in an hour," he said. When I asked how he could afford to miss all that, he simply said, "You need me today."
We loaded up the car with some "just in case" over night things and started out for Helena, just in time to get a message from my doctor's office that she would have to cancel the appointment. She had gone into a delivery. So instead, we pointed the car towards the small clinic here in Three Forks. The Nurse Practitioner - I remember her name was Kristin - did a brief exam and asked me several questions and then gave me the list of things we could be facing. And that was the first time I heard it: ectopic pregnancy. It hadn't even occurred to me. Kristin said, "Every time I hear 'stabbing pains' I worry about it a little bit."
I was so naive, I asked, "What happens if it is an ectopic?"
"Surgery." The word punched me in the gut. Of course. I knew that, didn't I?

She sent us to the hospital in Bozeman for an ultrasound. On the drive in, I tried desperately to stay calm. It might not be an ectopic. But it could be a miscarriage. Or it could have been a false-positive test and all of this could be an overreaction. When I started hoping for the last option, that's when I lost it again. What if I really was pregnant? How could I sit there and wish it away? But I wasn't ready. I didn't want to be pregnant yet. I was just feeling like myself again. Drake is sleeping through the night most nights. I have energy and wanted to work out and be strong before my next pregnancy. And I wanted to enjoy my marriage again. To share a bed with my husband and actually be able to snuggle up next to him without a belly in the way. I wanted to get out with my family this summer and maybe actually do some of the things we love and miss so much. But if there was a baby inside of me, I couldn't imagine anything worse than losing it. I was so conflicted I felt like I might fly apart. My husband just held my hand and kept trying to remind me, "We don't know yet."
The ultrasound was a two-part test, on the belly and internal. Which is humiliating, by the way. To lay there on that bed with all the worry and fear and then have someone...... it's horrible.
She was too quiet. And she kept looking at the same area over and over. And it hurt. It really hurt. And then she brought in the radiologist and my suspicions were reinforced as she pointed to the screen and said, "See? This area here."
He asked her to show him more angles and take a few measurements and then he said it, too. "Ectopic pregnancy." But he wouldn't commit to it. It could be an ovarian cyst, he said. He sent me to the emergency room for a blood test.
I am supremely grateful for the phlebotomist who was on shift that day. I have a severe needle phobia. Really. I pass out half the time. But the man who drew my blood was such a bright spot in the middle of one of my darkest days. He made me feel so comfortable and he made me laugh and he was so, so kind. I saw him several times that day but, sadly, never got his name. If anyone knows the tall phlebotomist at Bozeman Deaconess with reddish brown hair and a kind smile, please tell him thank you for me.
I layed in the hospital bed for almost five hours before we had any real answers. In the end, my worst fear was confirmed. Ectopic. A pregnancy in my right fallopian tube. And there is no saving it. The baby can't survive it and, if left untreated, often, neither does the mother. Those were the cold hard facts. Thank God for an OB/GYN who managed to share all of this with me with some warmth in her voice and manner. But "manage." That was the word they used. We had two options on how to "manage" the pregnancy. The first was medicinal - a dose of a chemotherapy drug that would dissolve the tissue. The second was surgery, in which case I could lose my fallopian tube and have decreased fertility in the future.
I was incapable of deciding. I was physically exhausted, mentally hazy, and emotionally raw. I couldn't form words to tell someone how to... how to... I still can't. A large part of me wanted to just go to sleep and have it be over. I told Justin I needed him to make the decision. He said that, for the sake of my health and our future children, we needed to do the medicine.
About thirty minutes later, a nurse came in with an extra-large syringe full of a yellow fluid. She said it had to be inter-muscular and had me roll on my side. As she slowly pushed the medicine into my body, I cried and squirmed. The moment she was out of the room, I lost it again. The medicine burned like evil. I felt like I had an enemy inside of me. I tried to escape it, clutching onto Justin, crying, "I don't want it! I don't want it! I don't want it. I don't want it. I don't want it....
When I finally stopped, I told him I wanted to go home, and he did everything he could to push the nurses to get me discharged quickly.
Over the next several days, I was weak and nauseous and in pain. I cried at the slightest reminder of what was happening, which was often since my body told me every minute. My mom and sister came to stay with me that first night, but after that it was just the three of us, trying to recover. And again, I have to tell you that my husband is a gift from God. He never went back to work or class that week, and he took care of everything. Which was a lot. When I list it all for you, you'll understand why I said it was like a bad country song: I was just trying to recover both emotionally and physically while also sick with a cough and head cold. Drake had a really bad relapse with his anal stenosis and was crying and screaming again as he tried to go the bathroom. (In fact, the first bad episode happened while I was having my ultrasound at the hospital, and Justin had to try to comfort both of us.) Then Drake got my cold. His first cold, poor baby. A fever and a cough and everything. On top of that, the chemotherapy medicine that was coursing through me made it necessary for me to wean Drake once and for all. It was harsh on both of us - like an insult to injury. Justin started getting up with him at night, both so that I could rest and so that Drake might not be so mad that I wasn't nursing him. Then, as a final straw, our boxer, Sadie, ripped open her foot and it got infected. It was so swollen, it was nearly twice the size of her other paws. Justin had to take her to the vet and brought her back with a cone on her head and two types of medicine she would need to take for seven days. Yes, even the dog.
The bright spots in the week were the time we got to spend together and the friends who reminded us how much they loved us. I had friends stepping up to watch Drake and offering to do anything else we needed. I got some beautiful flowers from my B's and a card signed by my dance family back home. I got a lot of sweet messages from friends and family offering their support and love. And we got through it. Thank you all.

Today, I'm feeling like a survivor. I still feel sad sometimes, but I feel stronger. I started working out the day after the doctor gave me the go-ahead this past Monday. I am determined to let this serve as a reminder of what is important. I will be strong for my next baby. I will be grateful for each day I get to spend with my husband and my son. And hopefully next time I see a positive pregnancy test, I'll be ready.
I still don't know how to resolve the fear that I lost Madeleine. Justin says my faith has to be bigger: that if I believe that God has shown me my daughter, I have to believe he will give her to me. I'm working on it. I'm praying a lot.
In the hospital that day, I said another little prayer just before the nurse gave me the shot: "Back to your care." And of at least that much, I'm sure.

Sunday, November 11, 2012

Someone help me

I need sleep. Badly.
I need my son to sleep. Desperately.


I've really hit a wall the last few days and it's feeling insurmountable at the moment. Mother{parent}hood is one part ecstasy, one part exhaustion. I know this. I get it. But I can't keep functioning like this. I haven't slept for more than two hours at a time (max 3 or 4 on a couple of very rare occasions) in well over a year now. A year! It has to stop.
Before you offer your generous words of wisdom, let me fill you in on the situation:
I chose to co-sleep with my son. He's been in my bed since the day he was born. Initially, I believe, this really saved me  in the exhaustion department. Every time he cried, he was right there to be nursed and lulled back to sleep. Drake and I became such side-nursing pros that I was often able to fall back asleep as soon as he was latched. But then he got bigger. And he started moving around more (read: kicking me in the face). And then his sleep schedule went wonky. Now, not only was he waking up to nurse every couple of hours but he was full on waking up. Wanting to move around and play and explore. That was a couple months ago. It took about two weeks of that for Justin and I to decide it was time to start putting him to sleep in his own bed. We had been introducing him to his bed for months already, as he napped there twice a day, so it wasn't very hard to get him to go to sleep there at night time, too. He cried at first, often for just a couple minutes but sometimes for as much as fifteen minutes - of which I hated every second - but then he got used to it. Now he goes down without a whimper. Binkie. Lovey. Blankie. Done.
But he does not stay asleep. My son still wakes up every hour and a half to two hours. Every night. Without fail. I had really hoped that once he was away from me - away from the smell of me - he wouldn't want to nurse as often. I did not get so lucky.
Do you remember when I told you that Drake has a thing called Anal Stenosis? It means his little bottom is too small. We had to cut out solid foods entirely for a while in order to keep his stools soft enough to pass. We've been able to reintroduce some now, but we have to be very careful about how much and what kinds. He still relies almost solely on breast milk. Which means he still gets hungry every couple of hours. I try to feed him his one solid food meal later in the evening so his tummy will be full at night, but it hasn't made a difference.
I really don't know what to do.
I woke up the other morning thinking, "Something has to change. Tonight I'm just going to let him cry it out every other time." Somehow, in that moment right after a hard night, that seemed like the obvious answer. During the day, he often naps for two to three hours. So he's not going to starve to death in three hours. So I will just force him to go that long between getting up to feed him/bring him back to bed with me. I've now tried that twice and CAN NOT do it. His cries are so devastated after a couple minutes of my ignoring him that it literally pains me not to go to him. And I feel for him! It's like he can understand when I lay him down in his bed that, ok, Mommy wants me to go to sleep. But then once he has been asleep, no matter what the length of time, now it's time for Mommy to come get me. I can hear the, "Why don't you come get me??!!" in his wails and it kills me.
So now what? Is this a case of, "Buck up, girl. That's what Mommy hood means."? Or is there something more I can do? Because, really and truly, I'm dying over here.
_______
*Please know that I am genuinely interested in any help or advice that anyone has to offer. What I am not interested in is any judgement or criticism of choices my family has already made. If that is what you are tempted to write when you read about my family's choice to co-sleep -or anything else - please, please refrain. I'm only going to delete it.

Saturday, September 22, 2012

Summer 2012 Recap, Part 1: Drake


 Labor Day weekend is long gone. Students have been back to school for weeks now (my husband included!). The evenings are starting to cool off and people are excited to bust out their jeans and sweaters. All of the social and cultural factors have been lining up for a while.  And now, it’s official. The Fall Equinox is here. Summer is over.
So I thought it was a good moment to pause, take a breath, and get back to this here blog of mine.
Drake, I want you to know that I didn’t stop writing in your online baby book because there was nothing exciting going on to tell you about or because your development became any less thrilling to me – quite the opposite, my son! We have been so busy living such a full life. And you! You have grown so much and so fast and so profoundly! You are moving and learning and vocalizing.
You have been getting around pretty well all summer – you perfected a military crawl several months ago. It was so effective, I wasn’t sure you would ever care to learn how to actually crawl on your knees. But about a week ago, you got it. And now, you are literally unstoppable. You are getting anywhere and everywhere – fast! You even started climbing the stairs – cute, but terrifying. Sure enough, you rolled down a few steps two days ago. It’s high time for some baby gates. You and I have errands to run later today…

 You are also sitting up incredibly well. This may not seem as impressive as the crawling, but it baffles me possibly more than the crawling does. You just look so big when you sit up so tall and sturdy like that. And it wasn’t even a process! You just DID it. One day, about a month ago, you just tucked your knees under you, pushed yourself up, and then turned and looked at me like, "What? No big deal." Now you crawl where you want to go, slide your legs under you, and sit and play with your desired object – you know, like electrical cords and box fans and dog bowls. Very appropriate toys.
In the world of “firsts,” there has been a lot going on. You said your first word about six weeks ago and haven’t stopped saying it since. What was it, you ask? Well, in a move that melted your momma’s heart yet again, you said “Momma” before any other word. It is so good to be loved by you, Little Man.
You went on your first airplane ride and went swimming for the first time when we visited the Tennessee clan this past July. You did great on the plane – it wasn’t the fun and restful trip that Mom has been used to in her life with the addition of you on my lap – but every stewardess commented on how good you were. On each leg of our trip, there was a baby that screamed and cried and kept everyone awake but it was never you. We were proud parents, for sure. 


 I was equally as proud and excited to see how much you loved the water when we went swimming in Nana and Pampa’s neighborhood pool. There was no fear whatsoever, even when I tried the blow-in-your-face-and-dunk trick. Your eyes got big, but you did great. Held your breath and decided to smile despite the shock. Between that and your very vigorous and strong kicking in the bathtub, I just know you’re going to be a great swimmer. It’s in your genes. 

 On a much less happy note, you were diagnosed with a little “condition” this summer. At the end of an extremely heart wrenching process, we found out you had something called Anal Stenosis. It basically means that your little bottom was too small. After eleven days without being able to go to the bathroom and a trip to the emergency room in Chattanooga that involved an enema and the most heart breaking hour and a half yet, it was our wonderful pediatrician here at home that finally told us what was going on. Mom had been feeling extremely guilty because the nurse practitioner in Tennessee had told us it was constipation from the foods I’d been feeding you that caused the cramping and screaming and pain that I had seen you go through for days. I was devastated that the bananas and rice cereal I had been so pleased to give you had caused you so much pain. Turns out, it wasn’t your diet at all. It was your hardware. That being said, Dr. Reynolds recommended that we go back to a strictly breast milk diet – well, breast milk and prune juice - to keep your stools as soft as possible while the situation sorted itself out. Yes, that was the good news! It was something you would grow out of simply through the process of… well… pooping. It would gradually stretch out, though it would be a slower than normal and slightly uncomfortable process. We had to learn to use at home enemas and mom had to chug gallons and gallons of water to keep her milk supply up to snuff (your appetite had grown used to the bulk of solid foods and it wasn’t easy to deprive you of it). But, I am happy to announce, you are doing MUCH better. Over the past couple of weeks, you have been pooping easily and frequently. I have even been able to reintroduce a few purees over the past week! I mixed in a little prune juice, just to be on the safe side, and – so far! – all is going well. I hope it is something that is behind us now.

 It’s hard to condense the past several months of change into one blog post (if only I had been keeping up with it, right?) but I want you to know it’s been a great summer. It’s been a pleasure to watch you grow and explore and just to BE your mom. I saw a commercial for laundry soap, of all things, today that said “you will have a child forever, but a baby for only one year.” What?! You won’t be my baby after one year?! But that is almost over! Agh. I can hardly stand the thought of how soon we will be celebrating your first birthday (though I am so proud to see you grow). I hereby vow to savor every day of your baby hood from today until it’s over, and then to celebrate the next phase with you too.

(And I hope to write a little more about it along the way.)